Fundraiser for NORD at Saddle Up Saloon
📅 Friday, March 1, 2025
⏰ 5:00 PM – 8:00 PM
📍 Saddle Up Saloon, 92 RTE 125, Kingston, NH
🌟 Join Us for an Evening of Support and Hope! 🌟
We’re thrilled to announce a special Benefit Fundraiser to support the National Organization for Rare Disorders (NORD), hosted by Jaime McHugh and her amazing hockey teammates, as they prepare to run the Boston Marathon for NORD!
Jaime is running her second Boston Marathon to raise awareness and funds for a cause close to her heart. Her identical twin daughters live with CHD2 epileptic encephalopathy and dystonia, rare diseases that require 24/7 care. NORD has been a lifeline for their family and countless others, driving public policy, funding innovative research, and supporting the rare disease community.
📢 Did You Know?
- 300 million people worldwide are living with rare diseases.
- More than 90% of rare diseases still lack FDA-approved treatments.
- Your support helps drive research and provides hope for a cure.
👉 Mark Your Calendar & Spread the Word!
Let’s come together as a community to support Jaime, her daughters, and the 300 million people worldwide living with rare diseases.
💙 Together, we can make a difference.